Not Sweating the “Small” Stuff

As I was shopping today for an external disc drive for my laptop because mine doesn’t work anymore because Andrew pushed my laptop off the table, I once again thought about all of the adjustments and changes we continue to make in our home to keep up with our little angel.  This particular adjustment cost us about $120.  I guess I got off easy though.  At least the laptop still works. 

Just to list a few:

  • We replaced our glass kitchen table with a granite table for fear of breakage.

    We open our windows from the top now she we don't lose him if a screen pops out.

    We open our windows from the top now so we don't lose him if a screen pops out.

  • New door knobs with lock and key for the powder room and office.  Of course they didn’t fit properly and my husband had to spend much more time than he anticipated to get them to work properly.
  • Furniture is slanted at odd angles to block outlets.
  • End tables are clear of anything and I’m not really sure why we have them at all.
  • Pictures are screwed into the walls or walls are left bare.
  • We paid an insane amount of money to have our TV mounted to the wall high enough so that he can’t reach it.
  • We converted a wine cabinet into an entertainment cabinet because it was the only thing we could find that was tall enough so that he couldn’t climb it, and it had glass doors so we could still operate the DVD and cable box, etc.

    He's actually stuck inside a kitchen drawer!!

    He's actually stuck inside a kitchen drawer!!

  • The chairs at our breakfast bar are bungied together so he can’t tip them over.  They are heavy metal chairs and he’s already dented our refrigerator and taken chunks out of the cabinets when he dumps the chairs over. 
  • Outlets in his bedroom have been raised out of his reach (and mine unfortunately) so we can safely plug in his DVD player and other light up things that he likes to watch at night.
  • We had to replace our ceiling fan in the family room with a ceiling fan that has a light fixture because he managed to break the only lamp we have in the house, twice.  Of course the wiring wasn’t there so we had to hire an electrician.
  • Our dog had to learn her own type of modified sign language because we can’t leave food or water on the floor for her.  The poor thing has to drag her water bowl across the floor if she wants water and her food bowl if she is hungry. 

    Ripping up the old decking.

    Ripping up the old decking.

  • And the latest thing, a new deck with composite flooring to try to eliminate the many, many splinters he gets all summer.  What fun for Paul!    

I could go on and on.  It’s amazing how much time is spent trying to outsmart him and plan for his next move before he actually does it.  I even use luggage straps to wrap around his dresser to keep him from being able to open the drawer and slam it shut at all hours of the night.  It surprises me sometimes at how resourceful I can be.  I didn’t know I had it in me.

Even with all of that, you can’t help but be completely in love with the little brat. ; )  I have to say, we’ve certainly learned alot about not sweating the small stuff.  Sometimes the small stuff ends up costing you a few bucks, but it’s still small stuff in the grand scheme of things. 

He’s happy, he’s fairly healthy, and we have, so far, had the resources to keep up with him.  And he keeps my brain from getting too lazy!   So I’m thankful for that!

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Andrew 101

 

first trip to the beach

first trip to the beach

I’m new to this blog thing, so please bear with me while I find my way around.  Andrew 101 is a great way for me to get started.  So…Heeeeere’s Andrew!

At birth Andrew weighed only 4 pounds and 15 ounces.

It was a scary time but he was a trooper.

He has great eye contact easily gets people to fall in love with him.

He had a nissen fundoplication at the age of 2 1/2 months and a g-tube placed at the same time.

Andrew has been fed through the g-tube since 3 months of age. 

He enjoys the tastes of certain foods, but has difficulty with the whole chewing, swallowing and breathing thing all at the same time.

The foods he loves to taste are chocolate chip cookies, oreos of course, and cheese puffs, as well as doritos and lime flavored nachos. 

He’s now 6 years old, weighs about 30 pounds (and has for the last 2+ years) and is about 36 inches tall.

He attends an autistic support classroom in a school nearby.

He loves his keyboards (yes, he has more than one)

He loves his keyboards (yes, he has more than one)

Andrew loves school and riding the bus to and from school

As most kids with cdls, Andrew has significant delays in speech.  He likes to say “mom mom mom mom” and has started producing the “h” sound which is pretty exciting.  We expect some speech some day.  For now he uses pictures, over 30 words in adapted sign language and we are experimenting with augmentative devices.

Andrew has two older brothers.  Justin is 19 and Joe is 8. 

His favorite things are toys that light up and make music, anything that vibrates including his electric toothbrush, and mirrors (he’s his favorite playmate).

His favorite things to do:  spinning, banging on EVERYTHING including tables, cabinet doors, windows (the louder the better), dumping our kitchen chairs, swinging on the swings, driving his little electric car in circles in the yard, running, oh…and harrassing our dog.

He’s recently become obsessed with zippers and will approach strangers to zip or unzip their coats.  I’m in no hurry for him to figure out that most pants have zippers too!  Yikes!!

He has an infectious laugh and at times appears to be laughing hysterically at absolutely nothing.

Loves foot rubs and can manipulate almost anyone into giving him one.

He just surprised Dad with the "three stooges" poke in the eyes.

He just surprised Dad with the "three stooges" poke in the eyes.

Andrew has a great sense of humor and likes to tease.

One of his favorie games is what we like to call “Andrew says”.  It’s kind of like “Simon says” only Andrew always gets to be the leader.  If someone else tries to lead he quits the game.

While he can certainly push the limits and beyond, he is truly a joy and such a happy boy.

Because of Andrew we’ve joined a special club in the world of special needs.  We’ve made so many new friends and have grown in so many ways.  I know it sounds cliche, but what a blessing!!

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