
Andrew signs "Pig" at Disney's Animal Kingdom
Ride the CdLS Rollercoaster!
28 Oct 2009 2 Comments
in cdls, cornelia de lange, wordless wednesday Tags: cdls, family fun, special needs, wordless wednesday
Andrew signs "Pig" at Disney's Animal Kingdom
10 Jun 2009 3 Comments
in cdls, cornelia de lange, parenting Tags: cdls, corneila de lange, cornelia de lange syndrome, family, family fun, parenting, special needs
We had a gathering of local CdLS families this past weekend. We had about 13 families here and it was a lot of fun. It’s always great when we have an opportunity to get together, share stories and laugh (or cry) about our crazy lives. Looking back at the pictures from the day I realized that other than my immediate family, there wasn’t a single person here who I would have known were it not for Andrew. From the other parents to the kids themselves, the siblings, and Andrew’s teachers, therapists, and even doctors…they hold a very special place in my heart and I’m so glad I’ve gotten to know them.
19 Feb 2009 2 Comments
in 25 Random Things, cdls, cornelia de lange, parenting Tags: cdls, cdls blog challenge, corneila de lange, cornelia de lange, cornelia de lange syndrome, family, family fun, kids, parenting, special needs
He will NOT wear a hat anymore. Bummer cause he looks so cute in them.
Andrew is 7 1/2 years old.
11 Feb 2009 4 Comments
in cdls, cornelia de lange, parenting Tags: cdls, cdls blog challenge, corneila de lange, cornelia de lange syndrome, family, family fun, special needs, wordless wednesday
A very expensive toy. This piano has taken such a beating. From chipped keys, to chewed edges, to scratches and dings galore! What a happy boy! That’s all that matters, right?
09 Feb 2009 2 Comments
in cdls, cornelia de lange, parenting Tags: cdls, corneila de lange, cornelia de lange syndrome, family, family fun, kids, parenting
So, the weather was really warm today. Just a few days ago we were buried in snow and it was freezing cold. Today was almost like spring. We took a walk hoping to wear the kids out a bit, but as you can see, they hitched a ride with dad. Joe and Paul had a little batting practice when we got back. Andrew did laps around the car, one of his favorite things to do while dragging his hands along the car and getting absolutely filthy! Then he tried his new tricycle. Still working on the pedaling, but he likes riding while pushing it around with his feet.
By the way, those are socks Andrew’s holding onto. He’s obsessed with holding socks. It started after we took the bink away. If you take the socks out of his hands he shuts down completely. You put the socks back in his hands it’s like plugging him in and he’s off again. Bizarre, I know. He has started putting them down a little lately. But he always knows where they are and always goes back for them. It’s a start though.
Anyway, it was a really nice time outside. Unfortunately, I wasted a good part of the rest of my day on facebook. I was looking at everyone’s pictures and got carried away. It was fun, but I’m feeling a little lame about how much time I spent on the computer today. I need to get a life I think.
06 Feb 2009 2 Comments
in wordless wednesday Tags: family fun, family loss, kids, wordless wednesday
So, I was trying to take a nice picture of Joe, but he kept hiding and turning away from me. I was getting so annoyed. It took the picture anyway and it actually turned out really nice. So here it is.
04 Sep 2008 4 Comments
in cdls, cornelia de lange, parenting Tags: cdls, cornelia de lange, family fun, kids dvd player
Last week I bought a kid’s DVD player from Walmart. It’s made by Fisher Price and it’s called “Kid Tough DVD Player”. I’m so happy with it I just have to share! It is a little pricey and I saw on line that the prices really vary. Walmart has the best price so far that I have seen. Andrew has been using this since last week. He used it in the car on our 8 hour trip over the holiday weekend and while we were on our trip and every day since then. It’s actually rubber all around the outside so when (yes, “when” not “if”) he throws it it is well protected. The worse thing that has happened so far is that the DVD came dislodged. When replaced it worked just fine again. The buttons are big and Andrew has already figured out what they all do. It’s great for a kid who likes to be in charge. The screen is only 3.5 inches, but it has a real nice picture and it’s perfect for him. Having a kid with CdLS, there are a couple of drawbacks. One, he has figured out how to open the door which means no DVD is safe. So far a piece of tape is holding him off. Hopefully it will last. Two, the buttons beep. Andrew loves noisy things, so he is always pushing the volume button and the contrast button just because they beep. I wish I could turn off the beeping.
This thing will also play musical CDs. Andrew has a few CDs he likes to listen to and he was so excited when he realized it was playing his favorite music. This is a great buy and I just had to share it. Especially for those with kids with special needs or even younger toddlers. This thing will come in handy if you go out to dinner or even to a friends house. If your child likes watching DVD’s or hearing music it will keep them busy for a while so you can have some free time, however brief it might be. It’s small, has a handle so they can carry it, and has legs in the back so you can stand it up in front of them at the table or on a tray in the car. I even made a DVD of pictures and videos from our weekend trip. Andrew loves to look at pictures of himself and family so this is a big hit. I can’t give him photo albums because he rips the pages out. I love this thing!!
Oh yeah, it has a rechargeable battery and comes with the adapter. You do have to buy the car adapter seperately which also comes with headphones which could come in handy for some of you.